CHAPTER 154. CONSORTIUM OF ALZHEIMER'S DISEASE CENTERS

EDUCATION CODE

TITLE 3. HIGHER EDUCATION

SUBTITLE H. RESEARCH IN HIGHER EDUCATION

CHAPTER 154. CONSORTIUM OF ALZHEIMER'S DISEASE CENTERS

Sec. 154.001. DEFINITION. In this chapter, "council" means the

Texas Council on Alzheimer's Disease and Related Disorders.

Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,

1999. Renumbered from Education Code, Sec. 151.001 by Acts 2003,

78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.

Sec. 154.002. CONSORTIUM; CLINICAL CENTERS. (a) The council

shall establish a consortium of Alzheimer's disease centers, to

be initially composed of the Alzheimer's disease centers at the

Baylor College of Medicine, the Texas Tech University Health

Sciences Center, the University of North Texas Health Science

Center at Fort Worth, and The University of Texas Southwestern

Medical Center at Dallas. The council may add additional

consortium participants to the consortium as necessary.

(b) The council shall provide funds to the consortium

participants to assist those participants to develop clinical

centers that meet the standards of the consortium.

(c) A participant's clinical center may employ any personnel

necessary to support its activities, including clinical,

administrative, and data management personnel.

Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,

1999. Renumbered from Education Code, Sec. 151.002 by Acts 2003,

78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.

Sec. 154.003. PROGRAMS. (a) The consortium shall coordinate

and direct its programs to provide to the extent practicable

centralized, uniform services among the consortium participants.

(b) The consortium shall:

(1) offer clinical services to all patients of the consortium's

clinical centers, notwithstanding the independent status of each

participant;

(2) establish a database for:

(A) making data available to each consortium participant

according to its specific activities;

(B) providing a resource index to facilitate research projects;

and

(C) providing data on patient health outcomes to appropriate

state agencies and to researchers in this state; and

(3) with the aid of the council and the National Alzheimer's

Association or its affiliate, develop and distribute to patients,

caregivers, and health care professionals educational materials

and services and inform patients of any research projects and

therapeutic trials open for their participation.

Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,

1999. Renumbered from Education Code, Sec. 151.003 by Acts 2003,

78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.

Sec. 154.004. STEERING COMMITTEE. To advise the council on

consortium activities, the council shall establish a steering

committee composed of one representative from each consortium

participant.

Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,

1999. Renumbered from Education Code, Sec. 151.004 by Acts 2003,

78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.

Sec. 154.005. DATA COORDINATING CENTER. (a) The council shall

establish a data coordinating center to be located at the Texas

Tech University Health Sciences Center. To the extent

practicable, the center shall be operated in association with the

data management operations of that institution's Alzheimer's

disease center.

(b) The data coordinating center shall establish a database and

make data available to each consortium participant according to

the specific activities of the participant.

(c) The council shall appoint a physician or other person with a

similar clinical background to administer the center.

(d) The person administering the center may employ any personnel

necessary to support the center's activities, including a project

coordinator. The person may require the project coordinator to

hold a master's or doctoral degree related to public health.

(e) The project coordinator shall coordinate the center's

activities among the center, the consortium participants, the

council, and the public.

Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,

1999. Renumbered from Education Code, Sec. 151.005 by Acts 2003,

78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.

Sec. 154.006. FUNDING. (a) The council may receive state

appropriated funds for the purpose of supporting the research

activities of the consortium under this chapter.

(b) The council may solicit and accept gifts, grants, and

donations for purposes of this chapter.

Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,

1999. Renumbered from Education Code, Sec. 151.006 by Acts 2003,

78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.

Sec. 154.007. ACCESS TO DATA. (a) The council may restrict

access to the data maintained by the consortium or data

coordinating center to consortium participants that contribute

data as requested by the council.

(b) The steering committee periodically shall review and

evaluate the availability and sharing of data under this section.

Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,

1999. Renumbered from Education Code, Sec. 151.007 by Acts 2003,

78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.

Sec. 154.008. PERFORMANCE REVIEW. The council, with

recommendations from the steering committee, shall review and

evaluate the performance of the consortium participants and data

coordinating center at least every five years.

Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,

1999. Renumbered from Education Code, Sec. 105.008 by Acts 2003,

78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.